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Webinars

Upcoming Webinars

Mental Health Series

This May, for Mental Health Awareness month we’re hosting a series of webinars to create a space to focus on what it means to care for your whole self.

Together, we’ll explore practical tools for emotional balance and everyday wellness—offering support, insight, and a chance to recharge for those receiving care, those giving it, and everyone walking this journey alongside them.

Ten Essential Tips for Emotional Balance in a World of Chronic Medical Stress

May 5th at 1pm EDT with Cristol Barrett Loughlin from Raregivers.

Register here.

Tools to Thrive: Everyday Habits for Healing and Whole-Body Wellness

In part two, Blake Langley from Fred Hutch Cancer Center in Seattle, Washington will be walking patients and families through exercises and practical takeaways for promoting well-being. Including brief section on key ways to promote a healthy diet and lifestyle.

May 13th at 1pm EDT.

Register here.

Previous Webinars

Previous Webinars available to watch on-demand. Scroll through to view all of the available webinars on-demand. To hear about upcoming live webinars and availability of new on-demand options, sign up for email alerts, or follow us on Facebook.

Hemophagocytic lymphohistiocytosis (HLH)

HLH and Cancer: Translating Research into Patient Care

Bridging the Gap of Bone Marrow Transplant Care: Pediatric to Adult Patients

HLH Research: Progress, Importance, and the Role You Can Play

What do we NOT know about the GENETICS of hemophagocytic lymphohistiocytosis (HLH)?

What do we NOT know about HLH and how could we all help to fill these gaps?

HLH-Diagnostic Considerations for Optimizing Successful Outcomes

Ask A Histio Expert – Exploring HLH with the HA of Canada

Focus on HLH

Histiocytic Neoplasms (LCH, ECD, RDD, JXG)

Pulmonary Hypertension in Pulmonary Langerhans cell histiocytosis: Diagnosis and Management

What diabetes insipidus is (AVP-D / CDI) and how to manage it.

Under the Microscope – Histiocytosis Pathology

Histiocytosis & Survivorship Working now, for the future of histiocytosis

Histiocytic Neoplasms from Behind the Scope: A Primer on Diagnosing different subtypes

Rosai Dorfman Disease (SKIP TO 2:15:19)

Understanding the NCCN Guidelines® for Histiocytosis in Adults

Focus on the Eyes & Vision

Endocrine Conditions in Erdheim-Chester Disease

Focus on Adult LCH/PLCH

Using ECD Consensus Recommendations: Advocate for Your Health

Wellness and Resources

Reading Between the Lines: Navigating Healthcare Paperwork and Privacy

Transition of Care from Pediatric to Adult Webinar

Finding Your Way Through Grief Webinar

Living with Rare Cancer: Lessons from Survivors and Caregivers of Histiocytic Cancers

Office Visit: Navigating Clinical Trials for Histiocytosis Clinical Trials Search

Moving through Rare DIsease

Functional Wellness & Nutrition for Histiocytosis

Focus on the Eyes & Vision

Histio Town Hall: COVID-19 and Our Community

All Webinars

HLH Research: Progress, Importance, and the Role You Can Play

Under the Microscope – Histiocytosis Pathology

What do we NOT know about the GENETICS of hemophagocytic lymphohistiocytosis (HLH)?

Histiocytosis & Survivorship Working now, for the future of histiocytosis

Finding Your Way Through Grief Webinar

What do we NOT know about HLH and how could we all help to fill these gaps?

Histiocytic Neoplasms from Behind the Scope: A Primer on Diagnosing different subtypes

Living with Rare Cancer: Lessons from Survivors and Caregivers of Histiocytic Cancers

Office Visit: Navigating Clinical Trials for Histiocytosis Clinical Trials Search

Rosai Dorfman Disease (SKIP TO 2:15:19)

HLH-Diagnostic Considerations for Optimizing Successful Outcomes

Moving through Rare DIsease

Functional Wellness & Nutrition for Histiocytosis

Ask A Histio Expert – Exploring HLH with the HA of Canada

Understanding the NCCN Guidelines® for Histiocytosis in Adults

Focus on the Eyes & Vision

Endocrine Conditions in Erdheim-Chester Disease

Focus on Adult LCH/PLCH

Focus on HLH

Using ECD Consensus Recommendations: Advocate for Your Health

Histio Town Hall: COVID-19 and Our Community