Newly Diagnosed
The Histiocytosis Association understands that patients and families fighting histiocytic disorders have complex needs. The Association is here to inform, empower and connect the members of this rare community – sharing knowledge and resources that will make the journey a little easier.
Newly Diagnosed Patients and Caregivers Researchers Healthcare Professionals Newly DiagnosedLearn About Histiocytic Disorders
Learn about the different disorders, explore additional outside resources and helpful “What Do I Do Now?” sections
Subscribe to our Emails
If you haven’t already, we invite you to subscribe to our email lists so you’ll get the most up-to-date information to help you support Histio patients and their families.
Find a Physician
The online Histio Physician Finder lets you search for doctors in your area that treat histiocytic disorders
Search the Resource Directory
Search for helpful patient and family resources in your area and around the world, such as financial aid, medical transportation, insurance assistance, international partner organizations, and more.
View Open Clinical Trials
Find and learn about clinical trials available for histiocytosis patients
Contact Us
We are here for you! If you would like to speak to someone and get help navigating your diagnosis, please reach out to us so we can connect you with resources to help you or be a caring ear to listen. Connect with through a call, text, email, or social media.
Patients and CaregiversSubscribe to our Emails
If you haven’t already, we invite you to subscribe to our email lists so you’ll get the most up-to-date information to help you support Histio patients and their families.
Find a Physician
The online Histio Physician Finder lets you search for doctors in your area that treat histiocytic disorders
Join our Private Facebook Discussion Group
Find and connect with others in the Histio Community.
Watch Educational Videos
Watch webinars and educational videos to learn about the lastest in Histio knowledge and research.
Search the Resource Directory
Search for helpful patient and family resources in your area and around the world, such as financial aid, medical transportation, insurance assistance, international partner organizations, and more.
View Open Clinical Trials
Find and learn about clinical trials available for histiocytosis patients.
ResearchersLearn About Funding Opportunities
Each year, we provide grant funding up to $50,000 USD for a select number of exceptional research projects focused on histiocytic disorders. Applications typically open in May.
Review Past Grants Awarded
Since 1992, the Histioyctosis Association has been provided research funding to promising projects around the world. Learn more about the projects that have received funding in the past.
Subscribe to our Emails
If you haven’t already, we invite you to subscribe to our email lists so you’ll get the most up-to-date information to help you support Histio patients and their families.
Learn about the Histiocyte Society
Get to know about our partnership with the professional medical association of more than 200 leading histio physicians and scientists from around the world and how you can get involved with the Histiocyte Society.
Healthcare ProfessionalsSubscribe to our Emails
If you haven’t already, we invite you to subscribe to our email lists so you’ll get the most up-to-date information to help you support Histio patients and their families.
Connect With Other Healthcare Professionals
Submit your information for inclusion in our Physician Finder so patients can find your services. Search the directory to connect with colleagues and healthcare professionals at other institutions.
Watch Histio Webinars & Education Videos
Learn more about Histio and the latest updates from experts around the world.
Physicians Resource Center
Explore a brief start of all the resources we have to offer for Physicians; all Healthcare Professionals may find this beneficial. Bookmark this page to return in the future.
Search the Broader Resource Directory
Search for additional resources to help patients and families navigate a histiocytic disorder diagnosis, including financial/housing assistance, international partner organizations, medical transportation, and more.