Meeting Overview

Join us on Saturday, July 18, in Los Angeles, California, for a Histio Patient & Family Regional Meeting designed to educate, connect, and support individuals and families impacted by histiocytic disorders.

The program will feature presentations from leading experts in histiocytosis care and research, covering all histiocytic disorders in both children and adults. Topics include diagnosis, treatment advances, clinical trials and registries, emotional well-being, transition of care, and a live Q&A panel. Attendees will also have opportunities to network and connect with others in the histio community.

This meeting is open to all patients, family members, caregivers, and others affected by a histiocytic disorder. Medical professionals are welcome to attend all educational sessions.

Featured disorders include:

• Langerhans Cell Histiocytosis (LCH)
• Hemophagocytic Syndromes (HLH/MAS)
• Erdheim-Chester Disease (ECD)
• Rosai-Dorfman Disease (RDD)
• Juvenile and Adult Xanthogranuloma (JXG/XG)

Featured Speakers

• Rima Jubran, MD – Children’s Hospital of Los Angeles
• Beth Martin, MD – Stanford Medicine
• Thomas C. Hofstra, MD – Children’s Hospital of Los Angeles ** Additional speakers will be announced soon.
Registration is required for all participants.

A nominal $10 registration fee helps offset meeting costs and includes access to all sessions, breakfast, lunch, and a parking voucher.

Children are welcome to attend at the discretion of their parent or guardian. Please note that childcare services will not be provided, and children must be supervised at all times.

Meeting location details and additional event information will be shared with registered attendees.

Questions? Contact us at outreach@histio.org.

Register Here